The Patient - Patient-Centered Outcomes Research

Title Publication Date Language Citations
“Not Just Little Adults”: Qualitative Methods to Support the Development of Pediatric Patient-Reported Outcomes2013/08/03English66
A Systematic Review of Patient and Caregiver Experiences with a Tracheostomy2017/09/15English65
Making Decisions About Implantable Cardioverter-Defibrillators from Implantation to End of Life: An Integrative Review of Patients’ Perspectives2014/03/26English65
Conducting Qualitative Research Online: Challenges and Solutions2021/06/11English65
How Illness Affects Family Members: A Qualitative Interview Survey2013/10/19English64
Burden of a Multiple Sclerosis Relapse2012/03/01English62
Group Decision Making with the Analytic Hierarchy Process in Benefit-Risk Assessment: A Tutorial2014/03/13English61
A Guide to Measuring and Interpreting Attribute Importance2019/03/25English59
Evaluation of Patient and Family Engagement Strategies to Improve Medication Safety2017/08/09English58
A Framework for Instrument Development of a Choice Experiment: An Application to Type 2 Diabetes2016/04/27English58
How do People with Different Levels of Activation Self-Manage their Chronic Conditions?2009/12/01English55
Use of Patient Preference Studies in HTA Decision Making: A NICE Perspective2020/01/16English55
Patients’ Preferences for Outcome, Process and Cost Attributes in Cancer Treatment: A Systematic Review of Discrete Choice Experiments2017/03/31English54
Practical Considerations in Using Online Modified-Delphi Approaches to Engage Patients and Other Stakeholders in Clinical Practice Guideline Development2019/09/23English54
Impact of Once-Daily Versus Twice-Daily Dosing Frequency on Adherence to Chronic Medications among Patients with Venous Thromboembolism2013/07/16English52
Barriers to Initiating Insulin in Type 2 Diabetes Patients: Development of a New Patient Education Tool to Address Myths, Misconceptions and Clinical Realities2014/06/24English51
Including Opt-Out Options in Discrete Choice Experiments: Issues to Consider2018/08/02English50
Symptom Monitoring in Pediatric Oncology Using Patient-Reported Outcomes: Why, How, and Where Next2017/10/25English49
Patient-Reported Outcome Measures in Atopic Dermatitis and Chronic Hand Eczema in Adults2019/07/04English49
Patient Perspective on Acute Intermittent Porphyria with Frequent Attacks: A Disease with Intermittent and Chronic Manifestations2018/06/19English49
The Predictive Value of Discrete Choice Experiments in Public Health: An Exploratory Application2015/01/25English49
Symptoms and Concerns Among Children and Young People with Life-Limiting and Life-Threatening Conditions: A Systematic Review Highlighting Meaningful Health Outcomes2018/10/26English48
A Systematic Review and Meta-Synthesis of Patients’ Experiences and Perceptions of Seeking and Using Benzodiazepines and Z-Drugs: Towards Safer Prescribing2016/06/09English48
Systematic Review of Patients’ and Parents’ Preferences for ADHD Treatment Options and Processes of Care2015/02/03English48
Perceived Benefits and Factors that Influence the Ability to Establish and Maintain Patient Support Groups in Rare Diseases: A Scoping Review2016/12/21English46
Engaging Older Adults in Health Care Decision-Making: A Realist Synthesis2016/04/05English45
The Development of Capability Measures in Health Economics: Opportunities, Challenges and Progress2014/07/30English44
A Cross-Sectional Study of the Impact of Spasticity on Daily Activities in Multiple Sclerosis2016/05/06English43
A Comparison of Analytic Hierarchy Process and Conjoint Analysis Methods in Assessing Treatment Alternatives for Stroke Rehabilitation2012/03/01English43
Caregiver Preferences for Emerging Duchenne Muscular Dystrophy Treatments: A Comparison of Best-Worst Scaling and Conjoint Analysis2014/12/19English42